Photo description:
Brandon Sun 13022013 Rhonda Towler visits with her five-year-old daughter Emma, who has Ohtahara syndrome, a rare progressive epileptic encephalopathy, in the living room of their home on Friday. Towler is frustrated over the lack of support her daughter has received from Childrens disABILITY Services. (Tim Smith/Brandon Sun) ***double check that cutline matches with story please***
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